Tag Archives: disability action

My book is now available

When I began this blog, about two years ago, I was also beginning the task of interviewing people who had experience advocating for a child or adult with autism. My intention was to write a book about those experiences. The … Continue reading

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Research projects

A few years ago I contributed to a couple of research projects conducted by honours and PhD students who were studying aspects of living with autism. In one I was asked to answer a series of questions about how I was dealing … Continue reading

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Posted in autism, disability services, parenting, research | Tagged , , , | 1 Comment

‘I’m glad I’m relatively normal’

I have to get this off my chest. I became really annoyed when I sent what I thought was an inspirational email to a few of my rellies. I had visited, on the same day, my brother who is undergoing … Continue reading

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Is independence a virtue?

Ted Kutnz (tedjkuntz@gmail.com) writes in a recent ‘Peace Begins with Me’ email: “I’ve witnessed … commitment to independence in the disability community. It is not uncommon for support services to be guided by the principle of ‘independence’. Will this action help … Continue reading

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Autism Support Agency Services

Autism SA is he major support organisation representing the interests of autistic people and their families in South Australia. Anthony, whose position with the agency involves several ‘hats’: he is, or has been, a support worker; a family information officer; an employment supervisor; … Continue reading

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Posted in autism, disability services, Planning for the future, self-advocacy, Support Groups | Tagged , , , | Leave a comment

Toward a definition of ‘care’

In a caring role, you sometimes need a change in attitude and direction if you want to become proactive. My son is 36 years old and lives in a group home with support workers employed by the SA Department for … Continue reading

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Posted in advocacy, autism, Carer role, counselling, disability services, Family, parenting | Tagged , , , , | Leave a comment

Perception of Disability

I took my son to a large indoor swimming pool the other day. He loves the water. Although he is 35 years old, he splashes the water like a three-year old. I think he just enjoys the feel of the … Continue reading

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Family Advocacy

When you learn for the first time that the reason for your family member’s distressing behaviour is autism, you and your family are presented with a challenge. Although it helps to have a name for your child’s odd behaviour, you … Continue reading

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A Tale of Social Inclusion

  Joe is an attractive man in his mid-30s. He enjoys life. He lives in a modern house in the southern suburbs of Adelaide with two ladies and two guys about his own age.   …   They are all disabled. Joe … Continue reading

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Guilt 2

There is also a need for carers to be aware of how others might choose to manipulate them and play on their sense of guilt. One mother tells of her deflation and despair as she left one particular meeting with a … Continue reading

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Posted in Carer role, disability services | Tagged , , , | 2 Comments