Category Archives: General information

Concerns about future housing for adult disabled child

On November 30th and December 1st I attended a conference sponsored by Carer Support http://www.carersupport.org.au — in partnership with Onkaparinga Council, Housing SA and Disability SA — for older family members caring for an adult child with a mental illness or … Continue reading

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Posted in advocacy, disability services, Planning for the future | 1 Comment

Research projects

A few years ago I contributed to a couple of research projects conducted by honours and PhD students who were studying aspects of living with autism. In one I was asked to answer a series of questions about how I was dealing … Continue reading

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Posted in autism, disability services, parenting, research | Tagged , , , | 1 Comment

Accommodation services: an alternative view

My son, Shaun, is autistic and cannot speak. He smiles, clicks his fingers and hums when he is happy. In the past few months he has been happier than he’s been for a long time. He now lives in community … Continue reading

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Is independence a virtue?

Ted Kutnz (tedjkuntz@gmail.com) writes in a recent ‘Peace Begins with Me’ email: “I’ve witnessed … commitment to independence in the disability community. It is not uncommon for support services to be guided by the principle of ‘independence’. Will this action help … Continue reading

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Autism Support Agency Services

Autism SA is he major support organisation representing the interests of autistic people and their families in South Australia. Anthony, whose position with the agency involves several ‘hats’: he is, or has been, a support worker; a family information officer; an employment supervisor; … Continue reading

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Posted in autism, disability services, Planning for the future, self-advocacy, Support Groups | Tagged , , , | Leave a comment

Toward a definition of ‘care’

In a caring role, you sometimes need a change in attitude and direction if you want to become proactive. My son is 36 years old and lives in a group home with support workers employed by the SA Department for … Continue reading

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Posted in advocacy, autism, Carer role, counselling, disability services, Family, parenting | Tagged , , , , | Leave a comment

Family Advocacy

When you learn for the first time that the reason for your family member’s distressing behaviour is autism, you and your family are presented with a challenge. Although it helps to have a name for your child’s odd behaviour, you … Continue reading

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Guilt 2

There is also a need for carers to be aware of how others might choose to manipulate them and play on their sense of guilt. One mother tells of her deflation and despair as she left one particular meeting with a … Continue reading

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Posted in Carer role, disability services | Tagged , , , | 2 Comments

The day I became a mother

The day I became a mother I couldn’t imagine how I would feel when the child I was holding in my arms would be a man. I could not  comprehend at the time that, although he was now a separate person, … Continue reading

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Cameron and his inspirational story

Cam-Can (on Radio National 360 stories 21st May 2011) http://www.abc.net.au/rn/360/stories/2011/3218156.htm (Audio available at this site) This is a story of Cameron, whose family created a ‘microboard’ to enable him to pursue a business of his own, even though he cannot communicate. … Continue reading

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